Our Objectives are:

  1. To provide the best possible support and advice network for people with Idiopathic Intracranial Hypertension and their families
  2. To advance the education of the public in general, people with IIH and the medical community in particular on the subject of IIH
  3. To promote and support research for the public benefit on all aspects of the condition IIH and to publish the useful results
  4. To raise the profile of the charity IIH UK.

We hope to achieve these by:

  • Providing information and links to sources of information for people with IH
  • Supporting people with IIH in contacting others with the condition
  • Working with other organisations who represent people with conditions with symptoms of, or symptoms similar to those of IIH
  • Increasing awareness of IIH both within the general public and the medical profession
  • Campaigning for funding to facilitate research into IIH, its treatments and possible cures.

Can you help?

IIH UK is run by a team of volunteers. The team either have IIH, or are close to someone with IIH. Could you help out with IIH UK?

Do you have:

  • Experience of voluntary organisations?
  • Fundraising experience?
  • Publicity experience?
  • Or just loads of enthusiasm for the IIH cause?

If so, we'd love to hear from you! Please contact us. Thank you.

Contact Us

Interested in getting involved with IIH UK?
Questions? Comments on our website, or want to know more about what we're planning? 
Also if you are a medical professional and would like to receive printed IIH UK Patient Leaflets, please email: