IIH UK is an official member of the Hidden Disabilities Sunflower Scheme and, as a registered charity, is authorised to distribute Hidden Disabilities Sunflower products

Who We Support

People with IIH

People with IIH

Idiopathic intracranial hypertension also known as benign intracranial hypertension

Parents, Carers and Family

Parents, Carers and Family

Guides and resources, to help your loved ones get access to the right help they deserve.



IIH UK has an extremely supportive online group with over 5000 members.

How You Can Help

IIH UK are looking for adventurous volunteers to make a fundraising parachute jump and if you raise enough in sponsorship you will get to jump for free!


Latest News

Important message from IIH UK

Today we want to talk about the importance of taking part in research. We have recently learnt that the IIH Intervention trial has not recruited as many patients as it needs and if recruitment does not pick up it may be closed. This would be a disaster as we really need this research trial to answer an especially important question.

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Because of the governments current social distancing advice there may be a delay in posting orders out to you.

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Interested in getting involved with IIH UK?
Questions? Comments on our website, or want to know more about what we're planning? 
Also if you are a medical professional and would like to receive printed IIH UK Patient Leaflets, please email: