Research news and events

Exercise and IIH Poster

Associations between physical activity, quality of life and headache in people with Idiopathic Intracranial Hypertension.

To see the poster, click the link below:

Exercise and IIH

IIH UK Invitation to Tender for Targeted Research Funding

IIH UK launches invitation to tender for Practical Exercise Guidance for Adults with Idiopathic Intracranial Hypertension.

Deadline for receipt of proposals: 12:00, Monday 25th October 2021

For more information, please click the links below:

Invitation to Tender

IIH UK Research Grant Application Form

IIH Research has never been so exciting

IIH UK are committed to working with researchers at the forefront of IIH Research that is driven by the needs of people with IIH.

The Top 10 Priorities for Research were identified by people with IIH, their carers and health care professionals. The IIH Top 10 research priorities have now been published and are being disseminated to doctors and research teams. The Top 10 will drive research and funding that is targeted in answering these priorities and its importance cannot be underestimated.

IIH UK works with partners and collaborators at the forefront of research into to find out more about their research. IIH UK also carries out its own research for the latest updates click here. To find out more about what research membership fees and fundraising efforts support click here.

Find out more about how research is carried out and how you could take part.


Your money is important to fund research

Research events

IIH UK supports and attends research events and conferences where IIH is on the agenda.

Upcoming events

IIH UK Patient conference - Save the date 26th June 2021 - Our annual conference for members of IIH UK. Hear the latest IIH Updates and research and meet others with IIH. For information on previous conferences and the content of presentations click here.


A one-day symposium which showcase the clinical approach and research currently being conducted on disorders of Intracranial Pressure (ICP) by both clinicians and translational scientists. Aimed at Consultants in Neurosurgery, Neurology, Ophthalmology, Neuro-radiology and those with a specialist interest in CSF disorders and Headaches. IIH UK attends and supports this event which is critical for dissemination of research to a wider audience. For information on past conferences click here.

European Headache Federation

This is an annual international conference for medical professionals. IIH UK submitted a poster in 2020 and attended this years virtual conference.

Contact Us

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