Links To Other Organisations

CSF Leak Logo
The CSF Leak Association is a registered charity in the UK, working to raise awareness of cerebrospinal fluid (CSF) leaks and associated conditions, such as intracranial hypotension.

Neurological Alliance logo
The Neurological Alliance are a collective voice for 80 organisations working together to make life better for millions of people in England with a neurological condition. They work with membership organisations like ours to campaign nationally and locally to ensure better services and outcomes for all those with a neurological condition.

AnnConroy Trust
The Ann Conroy Trust is a small but very active charity that depends on sponsors, donors and fundraisers to help fund research and provide the support and education that those living with Chiari Malformation and Syringomyelia and associated conditions.

NVCO Logo
We are members of the National Council for Voluntary Organisations. You can read about them here.

Rare Disease Day 2018
https://rarediseaseday.org/ Every year on the last day of February the Rare community celebrate Rare Disease Day. You can read all about it on the Rare Disease Website.

Family Fund
Family Fund is the UK's largest charity providing grants for families raising disabled or seriously ill children and young people. We aim to give all families raising disabled or seriously ill children and young people the same opportunities as others by providing grants for essential items such as washing machines, sensory toys, family breaks, bedding, clothing and computers. Find out more on 01904 550055 or join the conversation on Facebook, Twitter or on our website.

Rare Disease

Rare Disease UK Campaign on behalf of all those affected by a rare condition.

Brain & Spine
The Brain & Spine Foundation is a charity helping people affected by neurological conditions. The neuroscience nurses on the Brain & Spine Helpline offer support and information and can answer your questions on neurological symptoms, tests, investigations and conditions. Brain & Spine Helpline: 0808 808 100.

Headway Logo
Headway - The charity that works to improve life after brain injury. Provides information, support and services to people affected by brain injury, their family and carers.

The Brain Charity
The Brain Charity offers emotional support, practical help and social activities to anyone with a neurological condition and to their family, friends and carers. The Brain Charity forms part of the Neurological Alliance of which are members.

Cerebra
Cerebra is a unique charity set up to improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers.

Child Trust Brain Injury
The Child Brain Injury Trust aims to improve the quality of life for children and youth with a brain injury by providing a helpline, events, conferences, research, advocacy, grants and funding.

Contact a Family Logo
Contact a Family is the only UK-wide charity providing advice, information and support to parents of all disabled children. Free Helpline: 0808 808 355.

IPSEA Logo
IPSEA is a national charity providing free legally based advice to families who have children with special educational needs. All advice is given by trained volunteers.

Carers UK
Carers UK is a Charity set up to help the millions of people who care for family or friends. Helpline 0808 808 7777.

 RNIB Logo
The RNIB offers support and advice to blind a partially sighted people in the UK, helping people who have lost their sight to find their lives again. Helpline: 0303 123 9999.

RSBC
The Royal Society for Blind Children exists to help blind and partially sighted young people to live life without limits. With a history spanning more than 170 years the RLSB has become an expert in helping blind people achieve their goals in life.

British Tinnitus Association
The British Tinnitus Association offer tinnitus advice and information. Helpline: 0800 018 0527.

Patient
Patient Info offers trusted medical information and support.

Pals
PALS online provide a range of information to the public, healthcare and other professionals about the Patient Advice and Liaison services.

The Migraine Trust
The Migraine Trust A patient focused, research driven charity. Everything you need to know about migraine all in one place.

Shine

Shine Charity Provides specialist support and advice for spina bifida and hydrocephalus across England, Wales and Northern Ireland. They also provide information about Idiopathic Intracranial Hypertension


Household Quotes
Household Quotes offer advice on how to get home adaptions if you're blind or partially sighted.

NHHPC
The NASA Human Health and Performance Centre is a virtual centre that brings organizations together to advance human health and performance applications related to space and life on hearth. Member organizations address global issues and spaceflight challenges, share best practices and post collaborative projects that accelerate innovation.

GOV.UK
Gov.UK - The new place to find government services and information replacing Direct.gov and Business Link - Simpler, clearer, faster

Wikipedia Logo
Wikipedia has a good explanation of IIH and it's symptoms and treatment.

NHS Choices

NHS 111 service is the non emergency number. It's fast easy and free. You should use the 111 service if you urgently need medical help or advice but it is not a life threatening situation.


These links are provided as a source of information on websites operated by other parties. We do not control such websites and we take no responsibility for their content. These links are provided for information and our inclusion of links to such websites does not imply any endorsement of views, statements or information contained in such websites.

Contact Us

Interested in getting involved with IIH UK?
Questions? Comments on our website, or want to know more about what we're planning? 
Also if you are a medical professional and would like to receive printed IIH UK Patient Leaflets, please email:

info@iih.org.uk