IIH UK is an official member of the Hidden Disabilities Sunflower Scheme and, as a registered charity, is authorised to distribute Hidden Disabilities Sunflower products

Who We Support

People with IIH

People with IIH

Idiopathic intracranial hypertension also known as benign intracranial hypertension

Parents, Carers and Family

Parents, Carers and Family

Guides and resources, to help your loved ones get access to the right help they deserve.



IIH UK has an extremely supportive online group with over 5000 members.

How You Can Help

IIH UK are looking for adventurous volunteers to make a fundraising parachute jump and if you raise enough in sponsorship you will get to jump for free!


Latest News

Our annual conference for members of IIH UK took place on 19th September 2022. For more information and the content of the presentations click below.

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There has been an increase in sight threatening IIH. Please read this important message from Miss Mollan and Professor Sinclair.

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Our Life in Lockdown report was launched today. March 2020 the UK and world experienced an unprecedented event of a global pandemic Covid-19.

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Visit Our Online Shop!

Because of the governments current social distancing advice there may be a delay in posting orders out to you.

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Contact Us

Interested in getting involved with IIH UK?
Questions? Comments on our website, or want to know more about what we're planning? 
Also if you are a medical professional and would like to receive printed IIH UK Patient Leaflets, please email: