...The year 2005 turned my life completley upside down. I found out that I had the condition from reading what the doctors from the hospital had written to my GP in the letter that they give you on discharge. I wasn't actually told. I was given a bottle of pills and told I was going to get better if I took them. I didn't realise how serious it was. I was under the impression that it was a simple thing just like an infection that you could get rid of. Then i did my research.
It scared me more than anything not for the fact of having a headache as I could cope with that, but the fact that I could possibly not see my daughter as my eyes were bad. The Diamox really affected me and I suffered badly from the side effects. I was up in bed for the best part of 6 months until the effects slowly wore off. I was so scared in the beginning and I still am a little now of being left alone just incase something happens to me. I hate relying on people to help me as I'm a stubborn person but I've learnt not to say no when people offer to help, and when people ask how I am I don't always say "oh I'm fine" now, I tell people im feeling c***.
Having BIH has really changed my life. Ive always wanted another child but I'm almost to scared to think about it incase I end up really ill and can't look after my kids. I dont work as my child has disabilities and needs taking care of so I havn't really had a massive impact on any work. BIH has totally changed the way I look at life. The condition really threw me and knocked me for six. I'm sick now of being ill and there's nothing anybody can do. I would dearly love to write an upside on here but I've yet to get to that point and i hope i will.
'Lisa'