Links & Resources
Resources and links to sources of further information and support for Idiopathic Intracranial Hypertension (IIH). These links are provided as a source of information on websites operated by other parties. We do not control such websites and we take no responsibility for their content. These links are provided for information and our inclusion of links to such websites does not imply any endorsement of views, statements or information contained in such websites.
- IIH Support Forum – the international IIH Support Forum – a place for patients and all who support them to share their experiences, advice and support. Easy to use, friendly and well laid out – still the best!
- IIH Weekender – the annual weekend for IIH sufferers, their family and friends jointly organised by IIH UK and the IIH Support forum.
- SHINE Spina bifida, Hydrochephalus, Information, Networking, Equality. –Europe's largest organisation dedicated to supporting individuals and families as they face the challenges arising from spina bifida and hydrocephalus.
- Brain & Spine Foundation – Patient information on brain tumour, brain aneurysm, dizziness, headache, back pain, subarachnoid haemorrhage and other neurological conditions.
- Melbourne Neurosurgery has a lot of information on neurosuregry, including shunt operation and lumbar punctures, and information on anatomy in an easy to read format
- Neurosupport Supporting people affected by a neurological condition and their families
- Headway is a charity set up to provide help and support to people with brain injury, their family and carers.
- Rare Disease UK The national alliance for people with rare diesases and all who support them.
- Intracranial Hypertension Research Foundation The IHRF runs a patient registry, provides support for IIH patients, their families, and medical professionals, and produces a quarterly newsletter.
- Wikipedia has a very good explanation of IIH and it's symptoms and treatment
- Benefits Now: self assessment tool for Disability Living Allowance and Attendance Allowance and disability equipment shop
