Links to other organisations See our Resources page

Links to organisations IIH UK work with, is linked to or recommend.


Raremark community managers connect families worldwide with up-to-date scientific information, community insights and clinical trials. Click here for more information




Noninvasive ICP - is a Lithuanian-based scientific articles and forum portal about intracranial pressure (ICP) and disease associated with it. We are trying to encourage and stimulate discussions here in Lithuania and internationally about the importance of excess intracranial pressure, its diseases and new methods of non-invasive ICP monitoring.



The Brain and Spine Foundation is a charity helping people affected by neurological conditions. The neuroscience nurses on the Brain and Spine Helpline offer support and information and can answer your questions on neurological symptoms, tests, investigations and conditions. Neuro helpline: Brain and Spine Helpline: 0808 808 1000



Link to HeadwayHeadway - The charity that works to improve life after brain injury. Provides information, support and services to people affected by brain injury, their family and carers.




This charity provides non-medical information and support to people with a neurological condition and their families, including library facilities, project and office base for Neuro charities, programme of conferences and meetings.


Cerebra: Cerebra is a unique charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers.


Child Brain Injury Trust: Aims to improve the quality of life for children and youth with a brain injury by providing a helpline, events, conferences, research, advocacy, grants, and funding.



Contact a Family Is the only UK-wide charity providing advice, information and support to the parents of all disabled children. Free Helpline: 0808 808 3555



Codman & Shurtleff is a global neuroscience and neurovascular company that offers a wide range of devices and solutions for the diagnosis and treatment of neurological disorders. Codman aims to improve the quality of life in patients worldwide by developing innovative solutions across a broad spectrum of neurological conditions.



                                                                                                                                                                                                                                              The NASA Human Health and Performance Center is a virtual center that brings organizations together to advance human health and performance applications related to space and life on Earth. Member organizations address global issues and spaceflight challenges, share best practices, and post collaborative projects that accelerate innovation. 





IPSEA: IPSEA is a national charity providing free legally based advice to families who have children with special educational needs. All our advice is given by trained volunteers.


National Parent Partnership Network: Offer free, confidential advice, information and support to parents and carers about special educational needs.


Carers UK: is a charity set up to help the millions of people who care for family or friends. Helpline: 0808 808 7777


RNIB offers support and advice to blind and partially sighted people in the UK, helping people who have lost their sight to find their lives again. RNIB Helpline 0303 123 9999


Royal National College for blindRoyal National College for blind. Based in Hereford, the Royal National College for the Blind (RNC) is the UK’s largest specialist residential college for people who are blind or partially sighted. The College offers a wide range of academic and vocational courses combined with training in ICT, living and mobility skills. Our vision is to enable people with sight loss to achieve their full potential, independence and integration into society.


RLSB: RLSB exists to help blind and partially sighted young people live life without limits. And with a history spanning more than 170 years, the RLSB has become an expert in helping blind people achieve their goals in life. We’ve helped thousands of people over our history.




How to get home adaptations if you’re blind or partially-sighted. And some of the best adaptations you can have. Household Quotes

British Tinnitus Association: Advice and information from health professionals.


Link to Patient Info Trusted medical information and support




NHS Direct websiteFor expert advice on any health problem, contact NHS Direct, 24 hours a day or visit




PALS logoPALS - Online provides a range of information to the public, healthcare and other professionals about the NHS's Patient Advice and Liaison Services.


Gov.UK- The new place to find government services and information replacing Directgov and Business Link - Simpler, clearer, faster




Benefits Now: A self assessment tool for Disability Living Allowance and Attendance Allowance and disability equipment shop.


Wikipedia has a good explanation of IIH and it's symptoms and treatment.

These links are provided as a source of information on websites operated by other parties. We do not control such websites and we take no responsibility for their content. These links are provided for information and our inclusion of links to such websites does not imply any endorsement of views, statements or information contained in such websites.


For IIH UK resources - please click here