I was diagnosed after being rushed to hospital with thoughts of a brain tumour. I was scared till no end. Then finally I got a name BIH. But that was all no explaination just the name but within days my eyes kept getting worse and the pain oh not good! Every visual field I had kept geeting worse. It was 13 days after diagnoses I was transfered to a major hospital for an ONSF which ended in having no sight in my left eye.
The worst thing about IH, well where to begin! Losing INDEPENDENCE!!!! That was huge for me. I did everything for myself. I had my Jess at 16 so I did everthing. I worked full time as well and had 2 other children. I went from doing everything to relying on everyone. I hated it. I hate not being able to drive and I have been thrown into the disability category and have lost count how many times I have been told that I don't look sick and to go out and get a job. If only it was that easy.
IIH has changed my life because now I take time for me I am number 1 on my list. I have told people whom I didn't get along with where they stand in my life, and made it clear with others that I really don't have the time of day for them! So that's positive. We don't just sit around the house on weekends we go out to the beach, parks, and bushwalking. I don't tell people when I am sick as I would be ringing everyday plus hubby has a thing where he would rush me to hospital (no thanks). So keeping my mouth shut works. It's not bad pain but least that when I do complain it's for real.
I don't work now with thanks to my eyes the first time in 4 years, can't drive so I catch alot of buses and I have a phobia of buses so I have had to overcome that real quick.
I have learnt that is okay to ask for help.
And lastly my husband and I have grown closer and I think that we can take anything that life throws at us
'Diana'