Our aims and plans for the future
Our aims are:
- to provide information for sufferers of IIH
- to provide links to sources of information for IIH sufferers
- to support sufferers of IIH in contacting others with the condition
- to work with other organisations who represent people with conditions with symptoms of, or symptoms similar to those of IIH
- to increase awareness of IIH both within the general public and the medical profession
- to campaign for funding for research into IIH.
We are currently working to officially set up the organisation, and once we are up and running we hope to:
- produce a range of leaflets on subjects relevant to IIH
- provide information on resources and sources of information for sufferers
- provide a dedicated discussion forum for medical professionals with an interest in IIH
- run a pen-pal/e-pal register of people with IIH wanting to contact others with IIH
- run a register of medical professionals with an interest in IIH to help patients to find doctors with an understanding and expertise in IIH, and also to allow effective networking for medical professionals with an interest in IIH
- produce a quarterly newsletter for members
- work with other charities and voluntary organisations who represent people with conditions with symptoms of, or symptoms similar to those of IIH.
Can you help?
IIH UK is (or will be) run on an entirely voluntary basis. All of us who are involved in IIH UK either suffer from IIH, or are close to someone with IIH, so progress is slow. Could you help out with IIH UK?
Do you have:
- experience of voluntary organisations?
- fundraising experience?
- publicity experience?
- or just loads of enthusiasm for the IIH cause?
IIH UK gratefully acknowledges the support of