About IIH UK
IIH UK was formed by a group of IIH sufferers and supporters who 'met' on the internet through the original "BIH Forum". We realised that although there are other organisations who provide some information on IIH there was no national organisation dedicated to the needs of sufferers of IIH in the UK – so we set one up! We are all either diagnosed as having IIH, or are close to someone who lives with IIH.
Currently we are working to set up the organisation officially, putting together a constitution, arranging administration etc. This is sometimes a slow process as we all either suffer from or are close to someone with IIH and of course we all have families and lives outside of IIH UK!
While we are in the process of setting up the organisation officially, our website is the source of further news on IIH UK and home to the collection of leaflets written for IIH UK on IIH and associated subjects.
For more information on our aims, plans for the future of IIH, and how you can help, please see our Aims page.
IIH UK gratefully acknowledges the support of